January 16, 2024
Picture this: a seven-year-old whirlwind of joy and fearlessness named Everett, whose vibrant spirit and unyielding courage are rewriting the narrative of life with CRB1 blindness. […]
October 5, 2023
In the world of rare diseases, every step forward is monumental, every achievement a beacon of hope. One such beacon in our CRB1 retinal disease community […]
February 26, 2020
Opening Eyes and Rising Up For Blindness Earlier this month CRBF was able to share our mission at Novartis Pharmaceutical in Boston. Novartis now owns the […]
January 14, 2020
Our “One Word” for 2020 You may have heard about the “One Word” movement. If not, basically, instead of making a New Year’s Resolution (or for […]
September 30, 2019
Patients Now Have An Opportunity To Drive CRB1 Research and Advocacy The latest development in moving research forward for CRB1 LCA/RP retinal disease involves a collaborative […]
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