For Families

Welcome to the Curing Retinal Blindness Foundation.

Welcome to the CRBF family! Although this is a journey none of us planned to be on, we are grateful to have met and learn from other families living with CRB1 LCA/RP. We know for certain that while all of our journeys with this rare eye disease are similar, they are all quite different too. We are sharing some of our family’s stories here to be a source of inspiration and support for you. If you have a CRB1 LCA/RP affected family member and would like to add your family’s story here, please send an email to for instructions.

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For more useful information or to get in touch please use the links below.

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