January 16, 2024

Fearless, Fun, & Future Race Car Driver: Meet Everett (7, CRB1)

Picture this: a seven-year-old whirlwind of joy and fearlessness named Everett, whose vibrant spirit and unyielding courage are rewriting the narrative of life with CRB1 blindness. […]
October 5, 2023

Dr. Pete Quinn: A Beacon of Hope in the CRB1 Retinal Disease Journey

In the world of rare diseases, every step forward is monumental, every achievement a beacon of hope. One such beacon in our CRB1 retinal disease community […]
February 26, 2020

Opening Eyes and Rising Up For Blindness

Opening Eyes and Rising Up For Blindness Earlier this month CRBF was able to share our mission at Novartis Pharmaceutical in Boston. Novartis now owns the […]
January 14, 2020

Our “One Word” for 2020

Our “One Word” for 2020 You may have heard about the “One Word” movement. If not, basically, instead of making a New Year’s Resolution (or for […]
September 30, 2019

Patients Now Have An Opportunity To Drive CRB1 Research and Advocacy

Patients Now Have An Opportunity To Drive CRB1 Research and Advocacy The latest development in moving research forward for CRB1 LCA/RP retinal disease involves a collaborative […]
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