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January 16, 2024

Fearless, Fun, & Future Race Car Driver: Meet Everett (7, CRB1)

Picture this: a seven-year-old whirlwind of joy and fearlessness named Everett, whose vibrant spirit and unyielding courage are rewriting the narrative of life with CRB1 blindness. […]
October 5, 2023

Dr. Pete Quinn: A Beacon of Hope in the CRB1 Retinal Disease Journey

In the world of rare diseases, every step forward is monumental, every achievement a beacon of hope. One such beacon in our CRB1 retinal disease community […]
June 17, 2020

The Tawam Family

June 17, 2020

The Smith Family

June 17, 2020

The Smedley Family

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