Blog
January 16, 2024
Picture this: a seven-year-old whirlwind of joy and fearlessness named Everett, whose vibrant spirit and unyielding courage are rewriting the narrative of life with CRB1 blindness. […]
October 5, 2023
In the world of rare diseases, every step forward is monumental, every achievement a beacon of hope. One such beacon in our CRB1 retinal disease community […]
May 24, 2021
Today I got a new car. At the age of 1, I was legally deemed to never be able to get my drivers license or drive […]
April 5, 2021
Last week I stumbled over a cord. It was the end of Spanish class. I slung my bookbag over my back and started to make my […]
February 26, 2020
Opening Eyes and Rising Up For Blindness Earlier this month CRBF was able to share our mission at Novartis Pharmaceutical in Boston. Novartis now owns the […]
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