Our mission is to fund CRB1 research and move to a cure as soon as possible. The Curing Retinal Blindness Foundation is a 100% volunteer organization.
The children in our foundation are blind or visually impaired due to mutations in the CRB1 gene causing a rare genetic disease, a degenerative retinal disease (Leber’s Congenital Amaurosis, Retinitis Pigmentosa, or cone-rod dystrophy) Some of the children have already lost almost 100% of their sight. Many of the children still have some useable vision, but it will deteriorate if nothing is done to stop the degeneration. We are working to stop that degeneration and ultimately restore all CRB1 vision!