Jake was diagnosed with LCA CRB1 at the age of two. He is legally blind, has poor peripheral and depth perception and is night blind. He is AMAZING! He positively confronts these challenges with an eager will to learn and explore just like his peers. His determination and ability are humbling. He is trouble, he is hilarious, and most of all he is undeniably lovable.
When Jake was 15 months old, we noticed that his eyes were shaking. We later learned it was a condition called Nystagmus. This began our journey of a never explored world. After countless examinations, several tests, and a few different doctors, we were told of Jake’s condition in January 2012. Jake has received excellent care from The University of Iowa. There we met Dr. Arlene Drack MD. Her medical expertise, innovative approach and always hopeful disposition continues to guide us. We are so fortunate to live just a few hours away to have the ability to provide Jake with such excellent care.
Our family has been fundraising for the CRBF since Jacob’s diagnosis. The R.B EYE September Slam, a softball tournament, auction and picnic, was created in 2013. In September of 2019 we celebrated our seventh and final tournament raising over $100,000.00 total benefitting Curing Retinal Blindness Foundation.
Our newest adventure, Light the Night, Cocktails for Cure, Kansas City will debut April of 2020. Just as our softball tournament, this event is dedicated to friendship, fun, and philanthropy. It is an evening filled with live and silent auctions, great food and drinks, and live music all to benefit CRBF.
We believe that our days on earth are a gift- and to use them wisely. Each day is a new opportunity. A chance to change something for the better, the ability to make a difference for someone else. Every day we continue our mission for vision. By supporting the Curing Retinal Blindness Foundation, you are not just funding awareness, YOU ARE FUNDING A CURE! Hope has become the reality! As parents, our children are the light of our world. Please help them to be able to see how very beautiful it is!
Greg and Lisa Billingsley