Monthly Archives: November 2016

Real People, Real Stories: We’re Partnering With The Mighty!

We’re thrilled to announce a new partnership that will bring our resources in front of The Mighty‘s wide-reaching readership. We will now have a growing home page on The Mighty and appear on many stories on the site. We are so excited to bring you this news, as The Mighty has touched so many people, bringing readers together from all over the country.

What is The Mighty?

The Mighty is a story-based health community that is focused on improving the lives of people who are facing disease, disorder, mental illness and disability, just as we are intent on finding a cure and resources for CRB1 degenerative retinal disease. More than half of Americans are facing serious health conditions or medical issues like blindness or visual impairment, and they want more than just information; they want to be inspired. The Mighty publishes real stories about real people facing real challenges.

Their stories are shared by those who may be facing the same circumstances as someone else or other families. By spreading their stories, others may garner courage, hope or camaraderie, allowing them to open up or become “mighty” in their fight against these ailments. “You’re not alone” and “you matter” are two maxims through which those living with disease can find strength that they express and share in stories.

We encourage you to submit a story to The Mighty and make your voice heard. By doing so, you can eliminate the stigma that may come with being diagnosed with a degenerative retinal disease. We want to hear from you to spread the hope.

What is Curing Retinal Blindness Foundation?

Curing Retinal Blindness Foundation is the only patient organization for CRB1 disease, our mission being to fund CRB1 research and find a cure as soon as possible. As one of many foundations for the blind, we strive to help the children with deteriorating vision before it is too late. We are working to stop the progression of the disease and ultimately restore all CRB1 vision with donations for the blind.

Because we’re dedicated to helping children and families living with blindness, our partnership with The Mighty will be able to help even more people. Learn more about our mission at http://www.crb1.org.

Blindness Awareness Month – Touching the Top of the World

Mount Everest

On May 25, 2001, Erik Weihenmayer became the only blind person to have reached the summit of Mt. Everest. Erik’s, who was diagnosed with retinoschisis at a young age, lost his sight by the age of thirteen. Despite the hardship and the struggle that it brought him, he is living proof of the fullness of life one can have regardless of sight.

Seven Summits

By changing his focus from his disability to his strengths, Erik began rock climbing at a young age. He used his hands and feet to feel for holds, learning to depend on other senses and make them his tools. This motivation led him to an accomplishment most with their sight intact may not be able to achieve. In 2008, Erik succeeded in climbing Carstensz Pyramid on the island of Papua New Guinea. At the completion of this height, he scored the Seven Summits, standing on the highest point of every continent. Erik Weihenmayer was able to conclude a thirteen-year journey that began in 1995 and led him to become one of only 150 other mountaineers to have accomplished that feat.

No Barriers

It is important to acknowledge and spread awareness of the need for a cure for degenerative eye disease. However, it is also important to recognize that there are dreams, goals and aspirations to be achieved as well – and that by no means do they have to wait for a cure to be realized. Erik Weihenmayer is a distinct example of someone who did not let anything hold him back: “What’s within you is stronger than what’s in your way.”

Blindness Awareness Month

The Little Rock Foundation, also a non-profit organization like ourselves, initiated a bill into law that establishes October as “Blindness Awareness Month.” By creating a month dedicated to allowing people to understand the realities of living without sight, we can help those who are living with degenerative retinal disease. Working together with organizations, such as the Little Rock Foundation, we are able to expand the horizons of people and build a better world for the blind and the visually impaired.

Curing Retinal Blindness Foundation was established to seek a cure for CRB1 degenerative retinal disease, a rare eye disease. Mutations from this retinal eye disease can cause retinitis pigmentosa (RP), Lebers congenital amaurosis (LCA), or cone-rod dystrophy, which ultimately leads to blindness or visual impairment. Our mission statement is to fund a cure for this genetic disease to stop the deterioration of all of our children’s sight. As soon as possible, we want to find the cure so that we can restore all CRB1 vision. Help us out by donating or spreading the word today!