Our mission is to support children and adults that are blind or visually impaired due to CRB1 LCA/RP through funding research to treat this rare eye disease as well as connect those affected to resources for succeeding without sight. We are parents, patients and professionals working together to achieve these goals.


Our Mission

For Families

Our CRBF families are working every day to bring you the latest resources in living with blindness, as well as, move the research forward to create retinal disease treatments and cures.

For Researchers

Our fundraising currently supports research for mutations in the CRB1 gene of retinal disease, however all of the research work we support will ultimately benefit all retinal diseases.

The Curing Retinal Blindness Foundation is the only patient organization for CRB1 disease. Our patients are blind or visually impaired due to mutations in the CRB1 gene causing a rare, genetic, degenerative retinal disease (Leber’s Congenital Amaurosis, Retinitis Pigmentosa, or cone-rod dystrophy) Some of the children have already lost most of their sight. Many of the patients still have some useable vision, but it will deteriorate if nothing is done to stop the degeneration.
PLEASE HELP US DRIVE THE RESEARCH TO THE FINISH LINE: A CURE FOR CRB1.

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