The kids in our foundation are blind due to mutations in the CRB1 gene causing a rare genetic disease, a degenerative retinal disease (Leber's Congenital Amaurosis, Retinitis Pigmentosa, or cone-rod dystrophy) Some of the kids have already lost almost 100% of their sight.  Many of the kids still have some useable vision, but it will deteriorate if nothing is done to stop the degeneration.  We are working to stop that degeneration and ultimately restore all CRB1 vision!

Click on this video to see Corey Haas, a young LCA patient 
who had vision restored with gene therapy! 
A CURE IS IN SIGHT!